Cranioversary #4

Four years ago today I handed my baby over to a team of surgeons. I shared the full story last year, but I don’t let this day go by without celebrating it. Without shouting to the world what an amazing fighter my once tiny boy is. What amazing obstacles he has overcome, and is still overcoming.

We met with both his Neurosurgeon and his Plastic Surgeon in the last 2 weeks. These appointments always have me losing sleep and feeling anxious. One word from either of them and he could be headed under the knife again. We began preparing him, and ourselves. Deep down inside I just knew they would say the word surgery.

But they didn’t.

Praise God- his neurosurgeon told us he doesn’t even need to see us again. As in, never again! We don’t have to go back- ever, unless there is some unforeseeable problem in the future. I couldn’t’ believe it! I stayed reserved, I stayed skeptical. And then, this week we made the drive up to see the Plastic Surgeon.

The Plastic Surgeon smiled and congratulated us on how well he’s doing. He was impressed with how his skull is growing and at how smart our little guy is. The meeting was short and sweet and left us with the least amount of questions we’ve ever had.

We’re still waiting. We’re still watching. We will continue seeing our Plastic Surgeon once a year to update. He thinks we may need to have another procedure once my Little Man is around the age of 2nd Grade, but it’s a much smaller procedure. Just a little fill-in where his temples are still sunken in. And that’s ONLY if it doesn’t fill out on its own- and honestly, I’ve noticed a huge change in the last 6 months or so already. It looks as if it might fix itself.

So, here we are. Breathing a collective sigh of relief. Feeling like we can take some chances, financially or otherwise. We’ve been in a limbo, expecting another surgery. How freeing it is that we may never have to go through that again. We can’t stop smiling. And planning. And thanking God for this healthy ¬†boy who replaced such a sick and tiny baby.

There was a time I wasn’t sure we would ever get here. And here we are!



  1. Becky

    June 21, 2016 at 8:57 am

    He won’t need that other surgery Claiming it now in the name of Jesus!!!!!

  2. Rebekah

    June 21, 2016 at 6:20 pm

    I’m very happy for you all stephanie. I understand the fear and stress of more surgeries’. i had to have the glaucoma implant had in 2009 re-done has been nearly 5 weeks. should have had to be done before now to did not take well so I trying to by very thankful lasted this long. as usual the surgery went fine but complications now so pretty much stuck at home going bit nuts now. I’m a bit surprised you said you knew deep inside would hear the word surgery. but I feel the same often. when one has surgery on such serious issues on a child or so many as I have had on same area is sooo hard not to think this deep down. I tend to have a bit of a doubting thomas in me. but we got to keep focusing on god. if he leads us to it he WILL get us through it.

    1. mrsbishop

      June 22, 2016 at 11:54 am

      Amen. It’s hard to beat the doubt sometimes.

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