Category: cranio

Today- the last day of February- is World RARE Disease Day. The definition straight from the Global Genes website describes it as: World RARE Disease Day is an …

Four years ago today I handed my baby over to a team of surgeons. I shared the full story last year, but I don’t let this day go …

My son is behind on graphs and charts- but when I take the time to look how much he's overcome, I am amazed.

I’ve shared a little bit about my little guy’s surgery before. But not much. It was hard to talk about for a long time. Because it was so …

Steven is now 6 months old and doing great. His recovery has gone so well, and we were 2 months post op as of yesterday. He definitely keeps …

Wow I can’t believe how the time flies. I really wish I would’ve blogged throughout the process, but everything has happened so quickly. Steven is now 3 weeks …